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Contact Corner

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"Contact other people affected by a genetic condition"

AGSA will post requests for contact and letters from people searching for families with similar experiences, from those seeking or contributing specific information as well as other resource information.

Anyone who wishes to reply to a request should write directly to the individual or group concerned where an address is provided. The AGSA office may be contacted for the information to be passed on in the case of anonymous requests. Privacy and anonymity will be ensured if requested.

While AGSA aims to facilitate contacts between families it is unable to assess the suitability of these in individual cases.

It should be remembered that a shared genetic condition does not necessarily mean an equally shared value system between families. Different degrees of acceptance and different mechanisms for coping will be encountered and a non-judgemental approach is recommended in establishing contact.

If you would like to post a notice on Contact Corner, please ring 02 9211 1462 or This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Tetrasomy (48XXXX)
My daughter has tetrasomy x (48xxxx) and I was trying to find any other girls in Australia who may have this same disorder. The genetics department here in WA knows of no other cases in WA, and believes that there are no others in Australia. If you can help please This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Blooms Syndrome
A family would like contact with another family with this condition.

Dandy Walker Syndrome
A lady in NSW would like contact with someone else with this condition. Please This e-mail address is being protected from spambots. You need JavaScript enabled to view it for details.